Jay signed up for Cross Country in September and I was surprised! Neither Chris nor I ever had any interest that when we were in school.. Mind you Chris runs now, bikes, goes to the gym and they all go to TKD. ! So maybe that is rubbing off on Jay?! Anyhow today was the meet with local schools and Jay came in 48th! Not too shabby for his first time. I guess tomorrow we find out who made it to Regionals. Britt was asking me if I was going to go and immediately parking nightmares flashed through my head:-( Although I was impressed today with how NOBODY parked in the wheelchair spaces without a pass:-) I guess complaining for the past couple of years paid off! I feel like such a whiner, but, hey I prove a point. I really think that I should be a consultant on proposed parking lots. I could help them logically put accessible parking where it will be helpful. I will forever grateful to Matt Brown for his help in getting the extra 2 spaces installed. I do feel a tiny bit bad that the Emily Carr parking lot did lose 3 spaces to make 2 accessible ones...just a tiny bit! Now if only I could do something about the horribly uneven tarmac out back! If they did have a child in a wheelchair it would be a huge tip factor. If a family with a disabled child joins our school I will be in their pocket helping them fight!
Starting to think that I should be an advocate for disabilities...
Wednesday, October 2, 2013
Tuesday, October 1, 2013
My Stalker also known as Multiple Sclerosis (part 1)
When you first found me, almost 10 yrs ago, I was going through a rough period in my life. Life as a single mom with a 2 yr old was not easy and going through court for custody was not fun. You crept up on me and annoyed me for a few months. You were interrupting my work and my vision, yet, I had no idea who you were. Then court was over and life was back to normal. You must have set your sights on someone else because you went away for 2 years! Then you came back taking my legs out from under me and making me fall down the stairs. It was that day, my son's 5th birthday, that I found out your name! Multiple Sclerosis. I underwent a spinal tap, EKG, EEG and an MRI to unveil your identity. In the years following I barely caught a glimpse of you, which was fine with me! I even had another baby and that entire pregnancy you decided to terrorize someone else! It was so nice to have you go on vacation! Then lo and behold 2 years ago you decided to leave reminders of your existence. I now have a drop foot that makes me trip, as well as balance issues that makes the world seem wobbly. Some days the walls are strictly there for me to hold. I am going to whack you with my cane if I ever catch you! I know what I want to say and then you twist my tongue and the words come out all jumbled. Even as I type this you keep pushing the wrong keys...you can't even spell properly, so quit touching my keyboard! I have some really patient friends and family who don't care what you do or say. You couldn't even scare away my husband, so there! He is the most supportive man I could have ever asked for. My kids even remind me to rest and to take my cane so you can't embarrass me in public! I think you constantly being in my way has made me a stronger person. I don't take anything for granted anymore! Wearing my glasses is preventing the double vision from affecting my ability to drive. Keep throwing road blocks at me and I will find my way over or around them:)
I do think it is time you went on vacation again...perhaps a permanent one?
I do think it is time you went on vacation again...perhaps a permanent one?
M.S.~ My Stalker part 2
So the last time I tried to embarrass you to make you leave me alone I was unsuccessful. I am still doing everything in my power to take away your control over my life.
I have spent that last 6 months squashing your attempts to ruin my fun. Like when we went to Toronto in June and you made my legs feel like cement so I could not get into bed. Foiled that plan as Steven asked the hotel desk clerk for a stool for me to climb into bed on. Then, at Legoland when when you knocked my knees out I sat on my walker unable to move. This was when the nicest employee arranged for a wheelchair for the rest of my visit! So there! I was so worried about taking you to Ottawa to meet my uncle John and Aunt Ellie. Sometimes your behaviour is unacceptable! Happily you were trying hard to behave! Of course I was prepared this time as I had a wheelchair and a step stool, to get into bed, there waiting for me. So expecting you to act up made my trip pretty smooth! I was amazed at how accommodating people really can be<3
I am still taking Aubagio and it has kept your major attacks under control but seriously your little gifts are unwanted. I would love for you to return my bladder control! Stopping every hour on the way to Ottawa was NOT fun! Those people who built the enroute bathrooms need a turn in a wheelchair to see why it is unfair to put the accessible washrooms all the way at the end of the row of stalls! Oh ya...the drop foot you gave me years ago is really getting on my nerves, however we installed new door sills so you can't trip me there anymore. I have been blessed with many good friends and neighbours who understand why I can't go out and do the things that I used to. I however, am frustrated...some days I don't understand. I like being here by myself at times but I fear that once I am permanently in a wheelchair I will be a shut in and lonely. I sure hope you remember that Jay is only 7 before you do that to me. I am a fighter and I will not give in to your temper tantrums! I am now taking Fampyra with the attempts to ward off you taking away my ability to walk. I would also appreciate it if you stop taking words out of my mouth just as I am about to say them! Even worse is when you mix them up so what I say makes no sense. Seriously, I need a break.
You have have given me some good things though. I appreciate what I do have so much more than ever before. I never would have met my good friends Erika, Wendy, Bobbi, Trish, Krista, Laura, Karin, Dawn, Brenda, Rhonda, and countless others in my M.S. support groups without you. So for that I am thankful. You have also helped me to get the sidewalks in our neighbourhood repaired a bit faster than scheduled...my elderly neighbours thank you for that as well. Steven has reallt stepped up and is super helpful. He even helps with dinner! You also gave Jayden an easy Cub badge. Not many cubs have a mom with a disability so he is excited about that. I suppose you are not all THAT bad!
I also would not have had the chance to meet the nicest kids-young adults I suppose they are-who are going to be fabulous nurses! I sure hope they stay here in London and I get the chance to have them by my side if you send me to the hospital. They have actually encouraged me to start this Blog. I know they are here to learn all about how I actually live with you and you sure give me lots to tell them!
Once again M.S, I am prepared to fight and I will win!
I have spent that last 6 months squashing your attempts to ruin my fun. Like when we went to Toronto in June and you made my legs feel like cement so I could not get into bed. Foiled that plan as Steven asked the hotel desk clerk for a stool for me to climb into bed on. Then, at Legoland when when you knocked my knees out I sat on my walker unable to move. This was when the nicest employee arranged for a wheelchair for the rest of my visit! So there! I was so worried about taking you to Ottawa to meet my uncle John and Aunt Ellie. Sometimes your behaviour is unacceptable! Happily you were trying hard to behave! Of course I was prepared this time as I had a wheelchair and a step stool, to get into bed, there waiting for me. So expecting you to act up made my trip pretty smooth! I was amazed at how accommodating people really can be<3
I am still taking Aubagio and it has kept your major attacks under control but seriously your little gifts are unwanted. I would love for you to return my bladder control! Stopping every hour on the way to Ottawa was NOT fun! Those people who built the enroute bathrooms need a turn in a wheelchair to see why it is unfair to put the accessible washrooms all the way at the end of the row of stalls! Oh ya...the drop foot you gave me years ago is really getting on my nerves, however we installed new door sills so you can't trip me there anymore. I have been blessed with many good friends and neighbours who understand why I can't go out and do the things that I used to. I however, am frustrated...some days I don't understand. I like being here by myself at times but I fear that once I am permanently in a wheelchair I will be a shut in and lonely. I sure hope you remember that Jay is only 7 before you do that to me. I am a fighter and I will not give in to your temper tantrums! I am now taking Fampyra with the attempts to ward off you taking away my ability to walk. I would also appreciate it if you stop taking words out of my mouth just as I am about to say them! Even worse is when you mix them up so what I say makes no sense. Seriously, I need a break.
You have have given me some good things though. I appreciate what I do have so much more than ever before. I never would have met my good friends Erika, Wendy, Bobbi, Trish, Krista, Laura, Karin, Dawn, Brenda, Rhonda, and countless others in my M.S. support groups without you. So for that I am thankful. You have also helped me to get the sidewalks in our neighbourhood repaired a bit faster than scheduled...my elderly neighbours thank you for that as well. Steven has reallt stepped up and is super helpful. He even helps with dinner! You also gave Jayden an easy Cub badge. Not many cubs have a mom with a disability so he is excited about that. I suppose you are not all THAT bad!
I also would not have had the chance to meet the nicest kids-young adults I suppose they are-who are going to be fabulous nurses! I sure hope they stay here in London and I get the chance to have them by my side if you send me to the hospital. They have actually encouraged me to start this Blog. I know they are here to learn all about how I actually live with you and you sure give me lots to tell them!
Once again M.S, I am prepared to fight and I will win!
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